Patient Rights

Your Rights

• Upon request, have access to information about the organization’s kidney disease healthcare program philosophy and services.
• Enrollment in Kidneylink healthcare program is voluntary. May decline participation or dis-enroll (opt out) from your kidney disease healthcare program by contacting us at 877-225-9496.
• Have the right to know which personnel are responsible for managing care management services for the individual, including the staff member’s job title and role in your care management. Patients also have the right to speak to a supervisor of the staff member, if requested.
• Have the right to all kidney care management-related information, in an understandable format, clinical practice guidelines and decision support tools. Patients are encouraged to discuss treatment options with their treating practitioners.
• Have the right to receive accurate and timely information from your kidney disease healthcare program.
• Have the right to have personally identifiable health (PIH) information shared by your kidney disease healthcare program only in accordance with federal and state law. Patients will be treated privately, with courtesy and respect.
• Have the right to fully participate in all decisions related to their healthcare. Patients who are unable to fully participate have the right to be represented by parents, guardians, family participants or others, as designated.
• Have the right to receive timely information regarding changes or a potential termination of your kidney disease healthcare program.
• Have the right to decline participation, revoke consent or terminate participation at any time in your kidney disease healthcare program.

Your Responsibilities

• Provide information needed by your care management team in order to achieve the highest quality health outcomes.
• Provide accurate clinical and contact information and please notify your kidney disease healthcare program of any changes in this information as soon as you can.
• Follow instructions, advice and guidelines agreed upon with your kidney disease healthcare program and those providing the patient’s healthcare. The instructions may include, but are not limited to the following:
  • Follow exercise and dietary prescriptions
  • Daily monitoring (e.g., blood glucose monitoring, weight, and blood pressure), as prescribed
  • Consistent use of prescribed medications
  • Schedule and keep follow-up telephonic appointments
  • Obtain recommended screenings according to the disease-specific standards of care
  • Have a provider that plans and coordinates care
  • Understand the goals and targets agreed to with your nephrologist; understand your current health status in order to make lifestyle modifications to meet those goals and targets
  • Actively participate in your kidney disease healthcare program by following prescribed treatments and recommendations.
• Inform all of your practitioners providing care of treatments and recommendations what you are receiving from other practitioners.
• Notify treating healthcare providers, as applicable, about participation in your kidney disease healthcare program and share program materials if requested.
• Make a good-faith effort to maximize healthy habits, such as exercising, not smoking, and eating a healthy diet.
• Patients have the responsibility to contact appropriate healthcare and emergency response professionals in the case of an emergency.